Now, I know some people who come across this page who have "typical" children will think "So what?", but to those of us living in the special needs community, any progress is ground to celebrate!
Zoe has also recently begun showing interest in potty training. Her dad and myself have, since the beginning of this website, split, but both are very involved in each other's and our children's lives. We both still have the children every day and do still spend some time together as a family. Well, between houses, we have only been taking Zoe to the potty when she wakes in the morning and when she wakes from her nap. Over the last two weeks, she has had only a handful of accidents. A few days ago at her daycare, she came to the gate as I was leaving and told me, "Zoe pee!", so I asked her "Do you have to go pee?" and she nodded yes. She has never before told me she has to go or has gone. So I pulled her over the gate and was about to take her diaper off when I felt the moist and wet. She had just gone. BUT! It's progress!! She recognized that she had to go/had just gone and she told us! In a little less than two weeks time, we will begin potty training Isaiah and hope to train them both at the same time.
The day that Zoe potty trains fully, without accidents, there will be a huge celebration.
As of now, we do not have any medical updates. She was recently tested for Fragile X Syndrome, and her clinical geneticist was working on getting OHIP funding to cover an RNA sequencing test. For those who are unaware of what RNA sequencing is, our chromosomes have two parts to them, RNA and DNA. My understanding is that the microarray and FISH tests look at the DNA portion of the chromosome, where sequencing looks at RNA and DNA and can break the chromosomes down further than microarray and FISH can.
We have not heard any updates. Zoe will also go for a follow up MRI within the next few months to check the progression of her condition. We know it will not have gotten better, but we hope it has not gotten any worse. We will updates agai