Zoe's Journey with Microcephaly
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BIG BIG UPDATES!!! 06/25/2011
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Wow, so it's been a while since this was updated. It's been quite eventful in our lives lately. I have been busy with school, having finally finished the theory portion of my Developmental Service Worker program and am currently finishing up my externship. I am set to graduate in October or November before going back for Autism and Behaviour Sciences in January.

Other than that, we have a new member of the family. Zoe and Isaiah became big siblings to Anberlin Maria Kate on May 4, 2011. So far, at nearly 8 weeks old, Anberlin appears to be in perfect health with no signs of any kind of -cephaly.

Zoe is 4 now and developing and progressing nicely. She can sing her ABC's and recognizes every capital letter of the alphabet. She can differentiate between boy and girl and we're working on big/little, in/out, etc in therapy. In Occupational Therapy, we're working on colouring in the lines and being able to build her letter with the Handwriting Without Tears program. We're also working on focusing her attention span for longer periods of time.

Zoe starts school in September. We're all excited and nervous mixed into one. I look forward to her growing and progressing with her peers, but we're scared, too, that the school won't be able to understand or handle her medical needs. Zoe was diagnosed with Complex Partial Epilepsy in March. For those reading who don't know CPE, basically, it is a seizure, but she just looks like she is spacing out and not paying attention. I fear she may get in trouble at school for "not paying attention" when she's really having a seizure, and they may not get her medication in time, if at all. I don't know if I fear this or her being a flight risk more. It's all very complicated.

What else? We see her geneticist again next month to find the results of her MRI that she had in March. I hope it'll have more answers for us as to what her condition is, but I'm not giving my hopes up.

I think that's about it for now!
 


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    Brandi

    Hi, I'm Zoe's Mom, Brandi. I will be keeping this website as up to date as possible, letting you know all about Zoe.

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