Wednesday September 1, 2010, Zoe had her EEG. I woke her up at 2:00am to have her sleep-deprived, and we sat on the couch watching Finding Nemo, The Aristocats and Pinocchio. As I worked on homework, I struggled to keep her awake, but we managed to do so until her appointment time. She hated having the electrodes placed on her head. It was a sad site to see her head wrapped in bandages. The poor girl was so tired. Eventually, her dad and I laid down with her, one on either side of her, and she fell asleep right away. Daddy stayed with her during the EEG, while I did some essays that were due that day. And just as quickly as it began, it was over. I wish I had more information to pass along, but I don't, unfortunately, as we haven't received any report back on the EEG. Hopefully, we will soon.

On another note, we're one step closer to a diagnosis, or so we hope. Some of her latest testing revealed a translocation (move) of chromosome 15 to either chromsome 13 or 21. They are not quite sure which yet, as all three chromosomes are very similar in shape. While I'm not sure if it's because of this new information, or if other testing revealed anything else more serious, next week, September 15, we are moving from the Metabolic Genetics clinic at Sick Kids Hospital to Clinical Genetics clinic at Sick Kids Hospital. Apparently they want to begin testing us, her parents, and our son, too, to see if either of us passed whatever she has on to her, or if this condition was spontaneous.

I'm nervous, to say the least. We've wanted answers for quite some time now, but the thought that we may get some scares us too. What does it mean for Zoe?