Zoe's Journey with Microcephaly
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Zoe's Journey with 
Microcephaly
"Life is not a matter of milestones, but of moments"-Rose F. Kennedy

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Welcome to Zoe's website. Zoe was born on Sunday March 25, 2007 at 5:25pm. Our perfect angel weighed 6lbs 6.5oz, 18.5in long and was perfect in every way imaginable. Over time, things began to change in Zoe's personality and development. Our worst fear was autism, so we began feverishly researching and learning all we could, trying to anticipate such a diagnosis. However, we were very unprepared for her diagnosis.

On June 25, 2009, Zoe had an assessment done for autism. The pediatrician ruled it out quickly, but went over documents from her past visits with him. He proceeded to measure her head, our son, Isaiah's head, and our heads as well. As it turned out, Zoe's head was half a centimetre smaller than her then 6 month old brother, Isaiah's. Her head circumference, as of July 6, 2010 is 44cm, which falls into the 0.1% percentile,  or approximately -3.5 standard deviations for her height and weight of girls her age.  She was diagnosed with microcephaly.

Since December 16th, 2009, Zoe has undergone many tests. She has had a fluorescence in situ hybridization (FISH) test, metabolic tests, genetic tests and many more. Through the microarray test, we were able to uncover a chromosome translocation of the small arm of chromosome 15 (15p) to either chromosome 13 or 21, but we have not found which chromosome it is translocated too. Her geneticists do not believe the translocation is responible or has anything to do with Zoe's medical condition. We have still been unable to pinpoint a gene responsible for her microcephaly, nor have we been able to discover what her condition is.

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